Health Data Tools

Data from all the Registry’s major wave surveys are available. Identifying data have been removed or consolidated to protect enrollee confidentiality.

Wave 1 Adult Survey (2003-2004)

• De-identified dataset
• Codebook (PDF)
• Data File User’s Manual (PDF)
• Survey questionnaires

Wave 2 Adult Survey (2006-2008)

• De-identified dataset
• Codebook (PDF)
• Data File User’s Manual (PDF)
• Survey questionnaires

Wave 3 Adult Survey (2011-2012)

• De-identified dataset
• Codebook (PDF)
• Data File User’s Manual (PDF)
• Survey questionnaires

Wave 4 Adult Survey (2015-2016)

• De-identified dataset
• Codebook (PDF)
• Data File User’s Manual (PDF)
• Survey questionnaires

Wave 5 Adult Survey (2020-2021)

• Data File User’s Manual (PDF)
• Survey questionnaires
• De-identified dataset
• Codebook (PDF)