The World Trade Center Health Registry researchers track and investigate possible trends in illness and recovery.
Our reports are used to help create guidelines that can save lives and reduce injuries in future disaster settings. Through our Treatment Referral Program, we help enrollees get the 9/11-related medical monitoring and treatment they need.
The Registry continues its mission to better understand the long-term physical and mental health effects of 9/11, and to identify gaps in health care for all those affected.
After 9/11, there were concerns about potentially long-term health effects from the disaster, especially from the toxins people inhaled from the dust cloud and the psychological impact of the events.
In November 2001, the NYC Health Department helped create a registry devoted to handling 9/11-related health effects. Their main goals were to:
An estimated 400,000 were initially eligible for the registry. In July 2002, the World Trade Center Health Registry received federal funding to begin operations.
In 2003 and 2004, the Registry began a voluntary enrollment for people who lived, worked or went to school near the World Trade Center, as well as for those who were involved in rescue and recovery efforts. To enroll, people completed a health survey — called Wave 1 — about their experiences on 9/11 and their health.
We used this data to compare the health of those directly exposed to 9/11 to the general population.
Among eligible enrollees:
Due to an overwhelming response to the Wave 1 survey (PDF), the Registry conducted follow-up surveys:
In 2020, the Wave 5 survey was sent out with a focused effort to reach millennials who were registered as enrollees by their parents or guardians in 2003.
By looking at responses to health questions over time and matching the information to other health registries, we can learn about the long-term health effects of 9/11. Based on information gathered in these surveys, the Registry has published over 150 research papers.
The Registry’s research is public and have helped inform new policies and treatments. Our annual reports include information on the Registry’s current activities and accomplishments, as well as details on recent findings about the health consequences of 9/11.