For 20 years, the World Trade Center Health Registry has remained committed to researching and understanding the long-term health impacts of those exposed in the aftermath of 9/11 and assisting its Registry enrollees in getting care.
A community leader, a 9/11 survivor and a World Trade Center Enrollee. From appearing on recruitment posters to working tirelessly to sign up volunteer enrollees, Paul has spent the last twenty years as an advocate for the Registry.
A 2019 study conducted by the WTC Registry found a link between mental health conditions and poor asthma control for enrollees who were exposed to the World Trade Center (WTC) disaster.
According to a 2019 study, systemic autoimmune diseases (SAID) — including rheumatoid arthritis, Sjogren’s syndrome, systemic lupus erythematosus, mixed connective tissue disease, polymyositis and scleroderma — are an emerging health concern among people exposed to the dust cloud created after the World Trade Center (WTC) disaster.
Learn about eligibility and how to get monitoring and treatment for 9/11-related health care for enrollees and their families
Registries allow researchers and health professionals to track and investigate illness and recovery related to disasters. Lessons learned from a disaster can also save lives and reduce injuries in future disasters. The federal Agency for Toxic Substances and Disease Registry and the New York City Health Department established the World Trade Center (WTC) Health Registry in 2002 to monitor the health of people directly exposed to the 9/11 WTC disaster. The Registry became the largest post-disaster registry in U.S. history when more than 71,000 responders and survivors voluntarily enrolled in 2003-04. Since May 2009, the Registry has been funded by the National Institute for Occupational Safety and Health and has ongoing collaborations with academic and governmental entities and medical institutions.
The WTC Health Registry periodically follows-up with enrollees to track changes in physical and mental health over time and gaps in care.