HIV Care Status Reports
The NYC Health Department’s HIV Care Status Reports assists health care providers, health care facilities, and care coordinators seeking to reengage people with HIV who appear to be out of HIV care.
To request HIV Care Status Reports, you can securely submit lists of patients to the Health Department electronically, including patients who appear to be out of HIV care for at least six months. The Health Department will match the lists with information in the NYC HIV Surveillance Registry and other data sources, and securely send patients’ HIV Care Status Reports back. HIV care status definitions are listed below.
To initiate an HIV Care Status Report request, email the Health Department at CSR@health.nyc.gov or call 212-442-3388. A staff member will follow up with next steps.
Do not send patient names or other personal identifiers by email.
HIV Care Statuses and Definitions
- Established in Care: Patient had two HIV-related laboratory tests at the same clinical site with more than 30 days in between
- Possibly in Care: Patient did not meet the “Established in Care” definition above. Instead, patient meets at least one of the following three criteria:
- Had only one HIV-related laboratory test at any NYC clinical site in the past six months
- Had two or more HIV-related laboratory tests at different NYC clinical sites, regardless of the time between the tests
- Had two or more HIV-related laboratory tests at the same NYC clinical site, but less than or equal to 30 days apart from one another
- Follow-up Needed: Provider needs to continue efforts to reengage patient in care because patient did not have any HIV-related laboratory tests reported in the past six months and is not known to be deceased based on information reported to the Health Department or to national death registries
- No Follow-up Needed — Deceased: Patient is known to be deceased based on information reported to the Health Department or to national death registries
- Non-case: Patient is not in the NYC HIV Surveillance Registry, meaning there is no information to establish that patient has been diagnosed with HIV, has received HIV care or had an HIV-related laboratory test in NYC, or has been otherwise reported to NYC HIV Surveillance Registry
Note that HIV Care Status Reports are for information purposes. Providers should use their own judgment on follow-up activities.
Urgent Requests
Providers with urgent HIV Care Status Report requests (such as for a pregnant person) should call the Health Department’s HIV Epidemiology Program at 212-442-3388 for assistance.
Security and Confidentiality
The New York State Public Health Law and New York State Department of Health regulations protect the confidentiality of HIV-related information, including patient information exchanged as part of HIV Care Status Report requests to reengage patients in HIV care. Providers and their designees may disclose confidential HIV-related information only to authorized providers or their designees for whom this information is necessary to provide appropriate care or treatment to the patient. Unauthorized disclosure of confidential HIV-related information in violation of state law may result in civil and/or criminal penalties and forfeiture of further privilege to access confidential HIV-related information, including through HIV Care Status Reports.
If a provider or their designee no longer requires access to HIV Care Status Reports, they must notify the HIV Care Status Report manager as soon as possible. If a HIV Care Status Report designee is no longer with the facility or provider or should a facility or provider opt to change their HIV Care Status Report designee, the Medical Director must notify the Health Department’s HIV Care Status Report system manager immediately and demonstrate that they have revoked the previous provider or designee’s access to the HIV Care Status Report system. All current and prior providers and designees must maintain the confidentiality of the HIV-related information accessed through HIV Care Status Reports, including after reassignment within or departure from their facility.