March 12, 2012 – The Health Department today reminds adult enrollees in the World Trade Center (WTC) Health Registry who have not yet completed their third wave follow-up surveys to do so by the Sunday, March 18 deadline. To date, more than 60 percent of rescue/recovery workers and volunteers, residents and passers-by have provided updates on their physical and mental health ten years after 9/11. The WTC Health Registry is hoping the remaining 40 percent of enrollees will complete the survey this week. Enrollees can contact the Registry by email at email@example.com or by phone through 311 or directly at 1-866-692-9827.
“We strongly encourage all WTC Health Registry enrollees who haven’t responded yet to take just 20 minutes to tell us about their current health,” said Mark Farfel, ScD, director of the WTC Health Registry. “Answers to new questions about health care access will help us assess potential gaps in care and provide referrals to federally funded health monitoring and treatment services for both WTC responders and survivors.”
Launched last summer, this third major survey was sent to the more than 68,000 adults in the WTC Health Registry who were exposed to the WTC attacks and the aftermath, including nearly 13,000 who currently reside outside the New York/New Jersey area. A survey of more than 1,200 adolescents in the Registry began last November and will continue into the spring. The Registry’s 2011-12 health survey is available in English, Spanish and Chinese and enrollees can respond using three different channels – mail, phone or internet.
Published results of the first and second Registry surveys, particularly those regarding the health of Lower Manhattan residents, area workers and students, helped support passage of the James L. Zadroga 9/11 Health and Compensation Act. The Act, signed into law by President Obama in January 2011, provides services through the WTC Health Program to eligible responders and survivors.
About the WTC Health Registry
The World Trade Center Health Registry became the largest post-disaster public health registry in United States history when 71,000 people directly exposed to the WTC disaster voluntarily enrolled and completed the initial survey in 2003-2004. The Registry was closed for enrollment in 2004; however Registry findings continue to contribute to understanding the health impacts of 9/11 among all persons exposed to the disaster. The Registry was established by the New York City Department of Health and Mental Hygiene and the federal Agency for Toxic Substances and Disease Registry. The National Institute of Occupational Safety and Health has funded the Registry since May 2009. As of February 2012, the Registry has published 23 peer-reviewed papers in scientific journals. Additionally, several university-based researchers have recruited Registry enrollees for other 9/11-related studies and published their findings. More information about the Registry and its findings can be found on the Registry’s website.